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by Retina UK
Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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Our monthly e-Newsletter featuring the latest updates from Retina UK.
More information about our Professionals' Conference 2026 can be found on our website: RetinaUK.org.uk/event/professionals-conference/
More information about our Annual Conference 2026 can be found on our website: RetinaUK.org.uk/event/annual-conference/
This is the audio edition of the Retina UK Newsletter, Look Forward - Autumn 2026 (Issue 191). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources. Contents in this edition are as follows:We're counting the days until our conferencesFree CPD-accredited conference for professionalsRetina UK Annual ConferenceNutrition and inherited sight loss, promise vs proofThank youChallenge yourself, change livesResearch news round-upVolunteering, technology and community: Making a difference at Retina UKBringing us closer to effective treatmentsLiving life in full colour: Meet Tilly DowlerDates for your diaryPAID ADVERTISEMENT: Turn night into day - LunaPAID ADVERTISEMENT: Ran-Ban | Meta WayfarerDonate to Retina UK this autumn
In this session, our speakers will explore what it means to navigate early adulthood with a visual impairment, offering insights into key areas of life including hobbies, friendships, travel, employment and being involved with Retina UK.This is a opportunity to hear real stories, learn from lived experiences, and gain practical perspectives on building independence, maintaining connections, and embracing opportunities.We will also be joined by Robert Quinn, CEO of MakeSense. MakeSense is developing the worlds first ultra precise navigation technology for people with sight loss.Whether you are personally affected by inherited sight loss, supporting someone who is, or simply looking to better understand these experiences, this webinar promises to be informative and uplifting.What to expect:Personal stories from young adults living with inherited sight lossInsights into everyday life, from social connections to travelPerspectives on getting involved with Retina UKAn opportunity to feel inspired and connected
Find out more about the difference we made in 2025.This report is also available in PDF and plain text (Word) formats on the Retina UK website: RetinaUK.org.uk/resource/impact-report-2025/
In this episode of Meet the Professionals, Eve speaks with Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and Consultant Ophthalmologist at University Hospital Wales, where she leads a specialist genetic eye clinic.Together, they explore the vital role ophthalmologists play in diagnosing and supporting people living with inherited retinal diseases. Marcela explains the differences between ophthalmologists and optometrists, how referrals work, what happens during the diagnostic process, and the range of tests used to diagnose inherited retinal conditions.The conversation also covers what support is available following diagnosis, why some patients are discharged from regular ophthalmology care, when re-referral may be appropriate, and how ophthalmologists collaborate with researchers, genetic counsellors, Eye Care Liaison Officers (ECLOs), rehabilitation specialists and other professionals.This episode offers valuable insight for anyone living with inherited sight loss, supporting a loved one, or wanting to better understand the clinical care pathway and the professionals involved.
Our monthly e-Newsletter featuring the latest updates from Retina UK.
Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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