Free Daily Podcast Summary
RealTalk MS: Daily Summaries Delivered
by Jon Strum
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You'll meet the scientists who are creating tomorrow's MS treatments today. You'll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we'll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
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- 5 days ago36 min
Episode 480: MSToronto 2026 with Dr. Jeffrey Cohen and Dr. Robert Fox
Our coverage of MSToronto 2026 continues this week with two important conversations. First, we'll hear from Dr. Jeffrey Cohen about the latest clinical findings on CAR-T cell therapy as a potential treatment for MS. Then, Dr. Robert Fox will update us on the global research portfolio being driven by the International Progressive MS Alliance. And we have to talk about Christina Applegate. By now, the news of her misdiagnosis isn't really news. But we have some suggestions for how you might want to process that news. We have a lot to talk about. Are you ready for RealTalk MS??! This Week: MSToronto 2026 :22 But, first, we have to talk about Christina Applegate :46 Dr. Jeffrey Cohen discusses what the experts are learning about CAR-T cell therapy 6:51 Dr. Robert Fox shares an update on the global work being driven by the International Progressive MS Alliance 19:03 Share this episode 34:21 Have you downloaded the RealTalk MS app? 34:40 Next week 35:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/480 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com DOWNLOAD: The RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share PARTICIPATE: Phase 3 Clinical Trial for Orelabrutinib and Non-Active Secondary Progressive MS https://clinicaltrials.gov/study/NCT07299019 PARTICIPATE: Phase 3 Clinical Trial for Orelabrutinib and Primary Progressive MS https://clinicaltrials.gov/study/NCT07067463 LISTEN: RealTalk MS Episode 424: I'm a Participant in a Clinical Trial for CAR T-Cell Therapy and MS with Jan Janisch-Hanzlik https://realtalkms.com/424 JOIN: The RealTalk MS Facebook Group <a style="color: #e67e23;" href= "https://facebook.com/groups/realtalkms" target="_blank" rel= "
- 1 weeks ago45 min
Episode 479: From MSToronto 2026 with Dr. Bruce Bebo and Kristine Werner Ozug
Last week, about 8,000 MS researchers and clinicians arrived in Toronto, Canada, for MSToronto 2026, the joint meeting of the Americas Committee for Treatment and Research in MS and the European Committee for Treatment and Research in MS, and the largest MS research conference in the world. As the meeting adjourned, the National MS Society's Chief Research and Medical Affairs Officer, Dr. Bruce Bebo, joined me to share some of the presentations and announcements that he found particularly important. My RealTalk MS teammate, Kristine Werner Ozug, also joined me in Toronto. Drawing on her own journey with MS, Kristine brings invaluable personal insight to the table. This week, Kristine shares the research and critical conversations that she's taking away from MS Toronto 2026. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: MSToronto 2026 :22 Dr. Bruce Bebo shares the presentations and announcements that he found particularly important at MS Toronto 2026 1:11 Kristine Werner Ozug shares her take-aways from MS Toronto 2026 13:54 Share this episode 43:37 Have you downloaded the RealTalk MS app? 43:57 Next Week: More from MS Toronto 2026! 44:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/479 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com DOWNLOAD: The RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share WATCH: National MS Society Webinar -- MS Advocacy in Action: What the 2026 Elections Could Mean for Healthcare Policy and Access to Care https://youtube.com/watch?v=7AHyGKuRxvw VISIT: The Congressional Health Care Access Report Card https:/realtalkms.com/congressional-healthcare-access-report-card/ JOIN: The RealTalk MS Facebook Group <a style="color: #e67e23;" href= "https://facebook.com/groups/realtalkms" target="_b
- 1 weeks ago22 min
Episode 478: From MSToronto 2026 Patient Community Day with Professor Peter Feys and Karen Jacoby
Welcome to a special episode of RealTalk MS and The ECTRIMS Podcast! MS Toronto 2026 concluded with the event we were most looking forward to -- Patient Community Day -- where some of the top MS experts in the world broke down the research presented over the course of the 3-day meeting and answered questions from people living with MS in easy-to-understand English. In this special episode, Professor Peter Feys, an MS rehabilitation expert from Hasselt University in Belgium, and Karen Jacoby, who lives with MS and serves as an MSCanada Ambassador, stepped off the stage at Patient Community Day to share their perspectives on MSToronto 2026. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: MSToronto 2026 Patient Community Day :25 Just after stepping off stage at Patient Community Day, Professor Peter Feys and Karen Jacoby share their thoughts on MSToronto 2026 1:21 Share this episode 19:57 Have you downloaded the RealTalk MS app? 20:17 Don't miss Thursday's Special Episode! 20:59 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/478 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com DOWNLOAD: The RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share WATCH: National MS Society Webinar -- MS Advocacy in Action: What the 2026 Elections Could Mean for Healthcare Policy and Access to Care https://youtube.com/watch?v=7AHyGKuRxvw VISIT: The Congressional Health Care Access Report Card https:/realtalkms.com/congressional-healthcare-access-report-card/ JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review <a style="color: #e67e23;" hr
- 2 weeks ago30 min
Episode 477: One Year After CAR T-Cell Therapy with Jan Janisch-Hanzlik
Jan Janisch-Hanzlik was the first MS patient to receive CAR T-cell therapy as part of a clinical trial. We met Jan last year, in episode 424 of RealTalk MS, when she gave us a first-hand report on how she was responding to this treatment. This week, Jan is back with an update on how she's responding to CAR T-cell therapy one year later. We're just two weeks away from the U.S. midterm elections. We're sharing some resources that will help you get ready to vote. And we'll remind you that MSToronto 2026 begins tomorrow, and you still have time to register for Patient Community Day. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: An update one year after receiving CAR T-cell therapy :22 Some homework to help get you ready to vote in the U.S. midterm elections 2:44 Jan Janisch-Hanzlik shares an update one year after receiving CAR T-cell therapy to treat her MS 6:37 Share this episode 28:11 Have you downloaded the RealTalk MS app? 28:31 Next week 29:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/477 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com DOWNLOAD: The RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share REGISTER: ECTRIMS Patient Community Day 2026 https://ectrimspatientcommunity.eu WATCH: National MS Society Webinar -- MS Advocacy in Action: What the 2026 Elections Could Mean for Healthcare Policy and Access to Care https://youtube.com/watch?v=7AHyGKuRxvw VISIT: The Congressional Health Care Access Report Card https:/realtalkms.com/congressional-healthcare-access-report-card/ LISTEN: RealTalk MS Episode 424: I'm a Participant in a Clinical Trial for CAR T-Cell Therapy and MS with Ja
- 3 weeks ago36 min
Episode 476: MS in the Workplace with Dana Foote
What happens when you're diagnosed with a chronic, unpredictable condition just as your career is taking off? That's exactly what happened to my guest, Dana Foote. This week, Dana joins us to share her journey from hiding her MS diagnosis as a young auditor at one of the largest accounting organizations in the world to becoming National Managing Partner for Audit & Assurance Operations and a leader in the MS community. We'll also update you on the status of a disease-modifying therapy that has been submitted to the FDA for review as a potential treatment for relapsing MS and primary progressive MS. We're sharing details of the National MS Society's recent $8.9 million investment to support 15 cutting-edge research projects. We'll tell you about a study that shows physical therapy can produce confirmed disability improvement for people living with MS. And we'll remind you that with MSToronto 2026 just one week away, you can still register for Patient Community Day. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing MS in a demanding, high-stakes work environment :22 The FDA grants fenebrutinib Priority Review status 1:22 The National MS Society announced $8.9 million in new research investments 4:53 A study shows ongoing physical therapy can lead to confirmed disability improvement 9:12 We're one week away from MSToronto 2026. Will you be part of Patient Community Day? 13:40 Dana Foote shares her corporate journey from a young auditor diagnosed with MS to National Managing Partner for Audit & Assurance Operations at KPMG US 15:40 Share this episode 33:20 Have you downloaded the RealTalk MS app? 33:36 Next week 34:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/476 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com DOWNLOAD: The RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share REGISTER: ECTRIMS Patient Community Day 2026 https://ectrimspatientcommunity.eu RealTalk MS Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh <a href="https://realtalkms.com/461" target="_blank" re
- Oct 5, 202630 min
Episode 475: New Tools and Strategies for Managing MS-Related Cognitive Changes with Dr. Elizabeth Gromisch
Whether it's walking into a room and blanking on why you're there, struggling to pull up a word that's right on the tip of your tongue, or losing track of daily tasks, cognitive fatigue and brain fog can turn simple routines into exhausting hurdles. What makes cognitive changes particularly challenging is their invisibility. They don't show up on a routine check-in like mobility issues do. Family members might misread them as distraction. Employers might see them as disengagement. And all too often, clinicians don't have immediate, actionable tools to offer beyond standard advice. This week, we're talking with Dr. Elizabeth Gromisch, a research neuropsychologist at the Mandell Center for Comprehensive Multiple Sclerosis Care and Neuroscience Research at Mount Sinai Rehabilitation Hospital in Hartford, Connecticut. Dr. Gromisch's work focuses on moving beyond the diagnostic label to give people real, evidence-based compensatory tools. We're discussing the science of prospective memory—remembering to perform planned actions in the future—and exploring how smart digital tools, strategic daily systems, and patient empowerment can help you take control and maintain your independence. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: New tools and strategies for managing and even improving MS-related cognitive changes :22 We're less than 3 weeks away from MS Toronto 2026 Patient Community Day! Have you registered yet? 1:23 Dr. Elizabeth Gromisch shares a preview of new digital tools to measure and manage MS-related cogntive changes 2:19 Share this episode 28:39 Download the RealTalk MS app 28:58 Next week 29:42 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/475 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com REGISTER: ECTRIMS Patient Community Day 2026 https://ectrimspatientcommunity.eu DOWNLOAD: The New RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk M
- Sep 28, 202625 min
Episode 474: The House That MS Built with Sarah Timmerman
Most people don't think about home accessibility until mobility changes force the conversation. But what if you decide to take control of the unknown and design your living space for whatever the future might bring? My guest, Sarah Timmerman, explains how she took total control of her future by designing and building what she calls The House That MS Built—a home engineered from the foundation up to future-proof her independence through smart, universal design and relentless self-advocacy. We'll also tell you about a research team that identified 4 biomarkers that, together, can help a neurologist understand whether a stem cell therapy is working for their patient weeks before that patient returns to the clinic. We're sharing results of a trial that answered the question, "Can diet actually change what's happening at the cellular level inside the brain?" You'll want to hear these results! And we'll tell you about a research team that has developed a derivative of an HIV medication that restored mobility and vision to mice with the mouse version of MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The House that MS Built :22 Have you downloaded the new RealTalk MS app for your iOS or Android device? 1:16 Researchers at Tisch Multiple Sclerosis Research Center of New York identify 4 biomarkers that can help physicians track the response to stem cell therapy in people living with progressive MS 2:01 New research identifies how gut health can lead to nerve cell damage in MS 4:49 Repurposed HIV medication restores lost function in the mouse model of MS 8:48 Sarah Timmerman shares her story and explains how relentless self-advocacy became the foundation for the House that MS Built 12:55 Share this episode 24:09 Next week 24:29 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/474 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com DOWNLOAD: The RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share REGISTER: ECTRIMS Patient Community Day 2026 https://ectrimspatientcommunity.eu STUDY: Effect of Intrathecal
- Sep 21, 202638 min
Episode 473: The National MS Society -- A CEO Briefing with Dr. Tim Coetzee
RealTalk MS is celebrating our ninth anniversary, and we're marking the milestone with a special guest! Dr. Tim Coetzee, President and CEO of the National MS Society, returns to the show for a candid, forward-looking conversation about why today represents one of the most promising moments for advancing MS research and transforming clinical care. We're taking a hard look at the game-changers on the horizon: what it will take to shorten the diagnostic journey from years down to mere hours, why it's time to retire outdated disease labels in favor of true precision medicine, and the surprising science behind testing GLP-1s for neuroprotection. From unlocking massive clinical data sets to fighting for research dollars on Capitol Hill, Tim pulls back the curtain on the Society's strategic plan to end MS once and for all. Pop in your earbuds and join us in celebrating nine years of community and conversation! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Dr. Tim Coetzee briefs us on the National MS Society's strategic priorities and shares his vision of the future of MS care :18 Download the new RealTalk MS app for your iOS and Android smartphone and tablet 1:56 We gave the RealTalk MS website a glow-up! 2:37 Check your congressional representative's grade in the Congressional Healthcare Access Report Card 3:07 Dr. Tim Coetzee discusses the MS Society's strategic priorities and shares his vision of the future of MS care 3:46 Share this episode 37:04 Next week 37:24 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/473 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com REGISTER: ECTRIMS Patient Community Day 2026 https://ectrimspatientcommunity.eu DOWNLOAD: The New RealTalk MS App iOS: https://apps.apple.com/us/app/realtalk-ms/id6769516594 Android: https://play.google.com/store/apps/details?id=com.realtalkms.app&pcampaignid=web_share JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review <a style="color: #e67e23;" href= "https://realtalkms.c
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About RealTalk MS
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You'll meet the scientists who are creating tomorrow's MS treatments today. You'll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we'll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
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