Free Daily Podcast Summary
PPMD's Living Duchenne: Daily Summaries Delivered
by Parent Project Muscular Dystrophy
PPMD’s Living Duchenne podcast brings together community voices to talk about navigating the Duchenne experience.
Latest Episodes
The most recent episodes — sign up to get AI-powered summaries of each one.
- Sep 25, 202637 min
PPMD Living Duchenne: Caregiver Burnout: Creating a Caregiver Growth Mindset
This season of Living Duchenne digs into the rich topic of caregiving and Duchenne. On this episode our host, Rachel Poysky, chats with Duchenne friends and experts, Rachel Callander (facilitator for PPMD's Lighthouse Workshops) and pediatric neuropsychologist from Children's CO, Paige Naylor, about their insights on dynamics that can contribute toward a caregiver growth mindset. Listen in on this important, wide-ranging conversation around areas such as addressing over functioning, finding "micro joys," and understanding the connection between your child's independence and your own as a primary caregiver.
- Sep 18, 202626 min
PPMD Living Duchene: Caregiver Burnout: A Candid Conversation
Welcome to another episode in our series on Caregiver Burnout. How do you ask for help--especially if you're navigating a clinical trial experience? What does it mean to put a little more focus on yourself? How does a Duchenne caregiver structure their day? These are some of the questions we explore in our candid conversation with our host, Rachel Poysky, and guests Clare Perin and Susan Caldwell. These moms and caregivers of kids with Duchenne bring their insight and honesty to fielding the busy, ever-changing experiences in a Duchenne family.
- Sep 10, 202634 min
PPMD Living Duchene: Caregiver Burnout: Fostering Dialogue
Join us for another great episode in our Living Duchenne podcast series. This season we are bringing folks together to talk about caregiver burnout. Our fantastic host, Rachel Poysky, sits down with Duchenne Mom, Joanna Johnson, for a spirited and candid conversation about caregiving in the midst of raising a young adult. Rachel and Joanna dig into recognizing the signs of burnout, setting boundaries and limits for yourself with your family, and getting clear on what you need that is 100% FOR YOU (and letting the rest of the household know it). Joanna brings humor and important perspective on her caregiving experiences to date that are sure to resonate with others no matter where you are on your Duchenne journey.
- Jul 8, 202632 min
PPMD Living Duchenne: Raising an Independent Child: Young Adults
Welcome to our third episode in this season's PPMD podcast, Living Duchenne. Our topic is Raising and Independent Child. We welcome Adam Wechsler, a 29-year old man living with Duchenne, and Gretchen Agans, mom to Liam, a young adult living with Duchenne to talk about building independence and purpose in this time where young people are transitioning into early adulthood. Our host Rachel Poysky talks with Adam and Gretchen about remaining open to the many opportunities that exist for young men living with Duchenne--higher education, service, volunteerism, entrepreneur possibilities, consulting, and so much more. Join us and share to invite others to the conversation!
- Jun 11, 202632 min
PPMD Living Duchenne: Raising an Independent Child: The Middle Years
Please join us as we continue our discussion on Raising an Independent Child: The Middle Years. Our guests include Colleen Labbadia and Kate Vanderweele sharing their experiences parenting in those adolescent and early teen years (middle school and high school ages) with a mindset of preparing their children for a future with independence. Listen in on this great conversation where Colleen and Kate talk through successful practices to build ownership, self-advocacy, and incorporate "low stakes" situations that empower their young boys to autonomy.
- Jun 4, 202636 min
Living Duchenne: Raising an Independent Child
Welcome back to PPMD's podcast, Living Duchenne! This season we're discussing Raising an Independent Child. The path to purpose and independence begins at an early age for every individual. For those on the Duchenne journey this means tapping into creativity, community, and resources. This episode finds guests Christopher Bennett and Amy Ridolphi talking with our host, Rachel Poysky, about building a strong foundation for empowerment during those grade school and pre-adolescent years. Both guests share practical methods such as introducing chore responsibilities and socializing habits along with mental and emotional frameworks that benefit the entire family. Join us for a fantastic conversation!
- Sep 26, 202435 min
PPMD Living Duchenne: Focus on Siblings
We're rounding out Season 6 of Living Duchenne talking about the impact of Duchenne behavior on siblings. This conversation features fantastic guests, Colleen Labbadia, a Duchenne mom and counselor, and Hannah Divin, an older sibling of a brother with Duchenne. They join our host, Rachel Poysky, to share honest, heartfelt, and humorous perspectives on the world seen and experienced through a sibling's eyes. In this episode we chat about having open discussions about your sibling's needs, feelings, and experiences; making sure there's room for everyone's emotions; and finding the right ways to acknowledge that "everybody has a 'hard'" and it's important to keep an open, fluid dialogue about each family member's unique relationship to Duchenne. Join us!
- Aug 7, 202436 min
PPMD Living Duchenne: Understanding the Why-Duchenne Behaviors
Join us for another great conversation on Living Duchenne in our season focusing on the intersection of behaviors and the Duchenne experience. In this episode, our host Rachel Poysky chats with Dr. Felix Wu, PhD in Industrial Organization Psychology who also lives with Duchenne. Dr. Wu gives candid insight into the behaviors he's grappled with as his Duchenne has progressed. He talks about "understanding the why" behind various behaviors--recognizing that factors such as frustration, anxiety, grief, and insecurity (on both the part of parents and family members) play roles in the Duchenne dynamic as much as biology and neurology.
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About PPMD's Living Duchenne
PPMD’s Living Duchenne podcast brings together community voices to talk about navigating the Duchenne experience.
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Frequently Asked Questions
What is Podzilla's PPMD's Living Duchenne daily summary?
It's a free AI-powered email that summarizes new episodes of PPMD's Living Duchenne as soon as they're published. You get the key takeaways, notable quotes, and links & mentions — all in a quick read.
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When a new episode drops, our AI transcribes and analyzes it, then generates a personalized summary tailored to your interests and profession. It's delivered to your inbox every morning.
Is this an official PPMD's Living Duchenne product?
No. Podzilla is an independent service that summarizes publicly available podcast content. We're not affiliated with or endorsed by Parent Project Muscular Dystrophy.
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How often does PPMD's Living Duchenne release new episodes?
PPMD's Living Duchenne publishes weekly. Our AI generates a summary within hours of each new episode.
What topics does PPMD's Living Duchenne cover?
PPMD's Living Duchenne covers topics including Education, Business, Fitness, Health & Fitness, Mental Health, Self-Improvement, Non-Profit. Our AI identifies the specific themes in each episode and highlights what matters most to you.
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