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The Long Haul with Summer: Daily Summaries Delivered
by The Microvascular Research Foundation
On The Long Haul with Summer we are amplifying patient voices, talking about groundbreaking approaches to healthcare and challenging the limits of traditional medicine.
Latest Episodes
The most recent episodes — sign up to get AI-powered summaries of each one.
- 2 weeks ago52 min
She Was a Nurse for 25 Years. Doctors Still Dismissed Her Long COVID
After a mild COVID infection, nurse Laci Arnett developed debilitating Long COVID symptoms that left her unable to work or drive. Despite more than 25 years in healthcare, she struggled to find answers as medical tests came back normal and doctors suggested psychiatric explanations.In this episode of The Long Haul with Summer, Laci shares what it was like to go from caring for patients to fighting to be believed. She discusses the emotional toll of medical dismissal, voluntarily admitting herself to a psychiatric unit, and how chronic illness changed her life.She also talks about finding strength through her faith, writing her book Undiagnosed: From Nurse to Patient, and eventually meeting Dr. Jordan Vaughn, whose approach helped her finally feel heard and supported.It's a powerful conversation about Long COVID, navigating healthcare, and the importance of compassion when patients are searching for answers.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Oct 7, 20261h 21m
John Armstrong’s Long COVID Journey: Lyme Disease, Vein Compression & Finding the Right Doctor
After COVID, John Armstrong’s health kept getting worse. Severe fatigue, brain fog, memory problems, and crashes began affecting his work, his family, and his ability to be the active father and provider he had always been.After seeing doctor after doctor without getting a clear explanation for everything he was experiencing, John was nearly ready to stop looking. Then his wife convinced him to try one more doctor.That appointment changed the direction of his care.John shares his experience being treated for Long COVID, later discovering Lyme disease and iliac vein compression, undergoing treatment and stenting, and gradually seeing parts of his life return.He and Summer also talk about the emotional side of chronic illness, losing trust in your own body, grieving the person you used to be, and why finding the right people to keep asking questions can matter so much.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Sep 30, 20261h 17m
Doctors Gave Her Dad Two Options: Lung Transplant or Hospice. She Went Looking for a Third.
Aimee Knight watched her once-active father go from exercising and traveling to requiring significant oxygen support as his health rapidly declined.Eventually, his family was given two options: lung transplant or hospice.In this episode of The Long Haul with Summer, Aimee shares why she refused to stop searching for answers, how her family crossed state lines to pursue another path, and what happened after her dad began treatment.She and Summer also discuss the realities of advocating for a seriously ill family member, the importance of informed consent when conventional options have been exhausted, and the meaningful time her family was able to spend together along the way, including a trip to Las Vegas that once seemed impossible.Although his story did not end the way his family hoped, Aimee explains why she still sees his journey as a story of hope, perseverance, and a legacy that continues through the Microvascular Research Foundation.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Sep 23, 202626 min
Why You Crash After a Good Day With Long COVID | PEM Explained
You wake up feeling good, finally have some energy, and try to catch up on everything you haven’t been able to do. Then, hours or even days later, you crash.In this episode of The Long Haul with Summer, Summer explains post-exertional malaise (PEM), why it can be delayed, and why it can feel so different from ordinary fatigue.Drawing from her own experience with Long COVID, Summer talks through the many forms of exertion that can contribute to a crash, including physical activity, mental work, socializing, emotional stress, travel, errands, and even several smaller activities adding up throughout the day.She also explains the energy envelope, Spoon Theory, pacing, and the boom-and-bust cycle that can happen when you use more energy than your body can currently tolerate.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Sep 16, 20261h 17m
The Hidden Vein Problem Behind Long COVID, POTS, and Pelvic Pain
What if symptoms like brain fog, fatigue, heart racing, pelvic pain, and orthostatic intolerance have a vascular connection that is being overlooked?In this episode of The Long Haul with Summer, Summer sits down with interventional radiologist Dr. Brooke Spencer to explore pelvic venous disease, iliac vein compression, and the emerging research into their potential connection with Long COVID and POTS.Dr. Spencer explains why the venous system has historically received less attention than the arterial system, how impaired venous return and venous pooling may contribute to symptoms across multiple organ systems, and why vascular compression can sometimes be missed on conventional imaging. She also discusses ongoing research, the limitations of what is currently known, and why better data, education, and collaboration are essential as physicians work to understand these complex patients.Summer also shares her own experience after an earlier scan was read as normal, and why looking at imaging in the context of the patient’s symptoms can make such a significant difference.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Sep 9, 202654 min
Why Pushing Through Long COVID Can Make You Worse | Dr. Robert Groysman
Long COVID patients are often told to push through their symptoms, build their endurance, or keep going until their bodies adjust.But for patients experiencing post-exertional malaise, pushing past their limits can lead to an even harder crash.In this episode of The Long Haul with Summer, Dr. Robert Groysman joins Summer to explain the connection between post-exertional malaise, mitochondrial dysfunction, oxidative stress, and the energy problems many Long COVID patients experience.Dr. Groysman shares how his own experience with Long COVID led him to look beyond traditional medical specialties for answers. He explains why PEM is different from ordinary fatigue, why physical activity is not the only thing that can trigger a crash, and why pacing can be such an important part of protecting a patient’s baseline while working toward recovery.Summer and Dr. Groysman also discuss why standard rehab can sometimes backfire, the challenges of identifying mitochondrial dysfunction, and why treating Long COVID often requires looking at multiple systems rather than addressing symptoms one at a time.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Jul 22, 20261h 20m
I Treated Iliac Vein Compression for Years. Then I Became the Patient.
Summer had sent countless patients to Denver for iliac vein stents. She had watched the procedure, shadowed the team, and explained iliac vein compression in clinic more times than she could count. Then her own name appeared on the schedule.After an earlier scan was read as normal, Summer later learned she had severe iliac vein compression and Nutcracker syndrome. In this personal return episode of The Long Haul with Summer, she shares the symptoms that changed her daily life, what it was like to undergo the procedure herself, and the improvements she noticed within days.Recovery was not a straight line. Summer also opens up about the difficult MCAS flare that followed, the slow process of learning to trust her body again, and how becoming the patient changed the empathy and perspective she will carry into caring for others.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
- Jul 8, 20261h 1m
The Gut Symptoms Doctors Keep Missing in Long COVID
What if the gut symptoms many Long COVID patients experience are not just IBS, anxiety, or “functional” problems?In this episode, Dr. Vaughn interviews gastroenterologist Zach Spiritos about the overlooked connection between Long COVID, mast cell activation, gut barrier dysfunction, food reactions, dysautonomia, and chronic GI symptoms.They discuss why traditional scopes and imaging often fail to explain what patients are feeling, how COVID may disrupt the gut and immune system, and why symptoms that are often dismissed as stress or anxiety may have a deeper biological explanation.This conversation also explores IBS, MCAS, motility issues, microscopic colitis, inflammatory bowel disease, GLP-1 medications, probiotics, prebiotics, and why asking “why did this happen?” may be one of the most important questions in medicine.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
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About The Long Haul with Summer
On The Long Haul with Summer we are amplifying patient voices, talking about groundbreaking approaches to healthcare and challenging the limits of traditional medicine.
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