Rare Care Podcast

An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network

September 21, 2026·9 min
Episode Description from the Publisher

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Appell, founder and executive director of the Hermansky-Pudlak Syndrome Network. Patients with the most common type of this rare disease always develop pulmonary fibrosis.

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