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Rare Care Podcast: Daily Summaries Delivered
by Rare Disease Advisor
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
Latest Episodes
The most recent episodes — sign up to get AI-powered summaries of each one.
- 6 days ago11 min
An Interview With Theresa Strong, PhD, Director of Research Programs at the Foundation for Prader-Willi Research
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Theresa Strong, PhD, of the Foundation for Prader-Willi Research—which is the recipient of NORD's 2026 Abbey S. Meyers Leadership Award. Hosted by Simplecast, an AdsWizz company. See https://pcm.adswizz.com for information about our collection and use of personal data for advertising.
- 1 weeks ago10 min
An Interview With Rebecca Aune, Director of Education Programs at NORD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rebecca Aune, director of education programs at the National Organization for Rare Disorders (NORD), about Rare Research Launchpad. The free, self-paced online series–designed to introduce students and early-career scientists to research and career opportunities–uses cystic fibrosis and Krabbe disease as real-world case studies. Hosted by Simplecast, an AdsWizz company. See https://pcm.adswizz.com for information about our collection and use of personal data for advertising.
- Oct 5, 202612 min
An Interview With High-School Senior Aarush Shah, Cofounder of the Rare Disease Platform OAI Nexus
Larry Luxner, senior correspoondent for Rare Disease Advisor, interviews Aarush Shah, a high-school senior who, along with classmate Veer Chandwani, recently established OAI Nexus, the first public AI platform built exclusively for rare diseases.
- Sep 28, 202613 min
An Interview With Dr. Doug Flora on How AI Can Help Diagnose and Treat Cancer
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Flora, MD, about his new book, "Rebooting Cancer Care: Can AI Make Care More Human Again?"
- Sep 21, 20269 min
An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Appell, founder and executive director of the Hermansky-Pudlak Syndrome Network. Patients with the most common type of this rare disease always develop pulmonary fibrosis.
- Sep 14, 202614 min
An Interview With Rich Savino, Grandfather of a Boy With Duchenne
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rich Savino, a New Jersey grandfather of a boy with Duchenne muscular dystrophy. Savino, 71, is among a growing number of grandparents becoming advocates for patients affected by DMD.
- Sep 9, 202614 min
An Interview With Oncologist and Podcaster Kimberly Ku, MD, on 'Empathetic Communications'
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kimberly Ku, MD, an oncologist with Illinois Cancer Center and host of the podcast "Val-You Based Care,"
- Sep 3, 202611 min
An Interview With Christine Clemson, PhD, of Entrada Therapeutics
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christine Clemson, PhD, senior vice-president and global head of medical affairs at Entrada Therapeutics, about exon skipping therapies in Duchenne.
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Frequently Asked Questions
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It's a free AI-powered email that summarizes new episodes of Rare Care Podcast as soon as they're published. You get the key takeaways, notable quotes, and links & mentions — all in a quick read.
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When a new episode drops, our AI transcribes and analyzes it, then generates a personalized summary tailored to your interests and profession. It's delivered to your inbox every morning.
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Rare Care Podcast publishes weekly. Our AI generates a summary within hours of each new episode.
What topics does Rare Care Podcast cover?
Rare Care Podcast covers topics including Medicine, Fitness, Health & Fitness. Our AI identifies the specific themes in each episode and highlights what matters most to you.
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