Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care
Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.Together, they discuss:Dr. Seeley's personal journey with POTSWhy so many patients are dismissed or misdiagnosedThe connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobilityWhy women with POTS often face unique challenges in healthcareWhy we're experiencing an "epidemic of recognition," not an epidemic of POTSThe future of POTS research, advocacy, and patient careWhether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.Learn more about the Australian POTS Foundation: https://potsfoundation.org.auConnect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife
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