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Let's Talk About The POTS life: Daily Summaries Delivered
by The POTS Life
POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice
Latest Episodes
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- 1 weeks ago19 min
Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team
Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires consistent lifestyle changes over time.In this episode, we talk about the emotional side of life after diagnosis, including grieving your old life, learning to let go of constantly pushing through, and building a support system that truly understands what you're going through. We also discuss practical strategies for focusing on what you can control, including hydration, electrolytes, gradual exercise, and creating habits that support long-term improvement.If you're newly diagnosed or still learning to navigate life with POTS, this episode is a reminder that you're not alone and that while the journey isn't easy, it can get better.Connect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife
- Jun 30, 202651 min
Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care
Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.Together, they discuss:Dr. Seeley's personal journey with POTSWhy so many patients are dismissed or misdiagnosedThe connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobilityWhy women with POTS often face unique challenges in healthcareWhy we're experiencing an "epidemic of recognition," not an epidemic of POTSThe future of POTS research, advocacy, and patient careWhether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.Learn more about the Australian POTS Foundation: https://potsfoundation.org.auConnect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife
- Jun 16, 202616 min
Learning to Trust Your Body Again with POTS
How do you start trusting your body again after a POTS diagnosis?In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings and travel to summer events and driving, they discuss practical ways to prepare, pace yourself, and build confidence as your body changes and improves.They also dive into the connection between POTS and anxiety, why progress isn't always linear, and how small wins can help you regain trust in yourself over time.Whether you're newly diagnosed or further along in your journey, this episode is a reminder that fear doesn't have to make the decisions.Connect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife
- Jun 2, 202650 min
POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon
What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers.We also talk about recognizing early signs of hypermobility, building the right healthcare team, advocating for yourself, and why validation matters when living with a complex chronic illness.Whether you're a patient, parent, or healthcare provider, this episode offers practical insights and hope for navigating the journey.Follow Dr. Solomon: @thebendypediatricianLearn More: https://thebendypediatrician.com/Connect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslifeTimestamps00:00 Introduction03:16 Living with hEDS & Dysautonomia05:43 Early Signs of Hypermobility in Children10:36 Understanding EDS & Hypermobility12:14 Pain, Fatigue & Invisible Illness22:32 The Connection Between POTS & EDS23:22 Why Patients Need a Healthcare "Quarterback"28:58 GI Symptoms, Dysmotility & EDS31:51 The Importance of Validation33:51 Building the Right Care Team36:33 Tips for Advocating for Yourself41:40 The UVA EDS & Hypermobility Clinic46:05 Advice for Newly Diagnosed Patients47:20 Finding Hope
- May 19, 202626 min
POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm
In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal journey to diagnosis, the challenges of living with POTS, MCAS, and hEDS, and the work she does through the Dysautonomia Support Network (DSN) to help others feel more supported and informed.We also talk about practical tools for managing daily life with dysautonomia, including pacing, symptom tracking, accommodations, mental health, and building a better quality of life while navigating chronic illness.About DSN: Dysautonomia Support Network is a nonprofit dedicated to supporting and empowering those with dysautonomia through education, resources, and community. Learn more at dysautonomiasupport.org.Workbook:The Dysautonomia Workbook: A Guide to Empowered Livinghttps://www.dysautonomiasupport.org/product/the-dysautonomia-workbook-a-guide-to-empowered-living/Follow DSN:Instagram: @dyssupportYouTube: @DysSupportFacebook: Dysautonomia Support NetworkConnect with Joanna:LinkedIn: Joanna Behm
- May 5, 202621 min
What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)
If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps.In this episode, we break down what to focus on early and what to avoid.We talk through common mistakes after a POTS diagnosis, including over-relying on water without enough sodium, falling for “electrolyte” products that don’t contain meaningful salt, and making drastic diet changes too quickly. We explain how to approach hydration and electrolytes more effectively, including why sodium matters and how to start building tolerance.We also cover nutrition myths, why cutting multiple foods at once can backfire, and how to use simple tracking to identify real triggers. On the movement side, we walk through why exercise is still important with POTS and how to approach it in a low, slow, and sustainable way to avoid worsening symptoms.If you’re feeling stuck, overwhelmed, or unsure where to start, this episode will help you take your next step with more clarity.Timestamps:00:00 What to do after a POTS diagnosis01:20 Common mistakes early on02:45 Electrolytes vs water (what actually helps)04:50 How much sodium you need07:10 Choosing the right electrolyte options09:20 Why cutting foods too quickly backfires10:20 How to track food triggers12:00 MCAS + food sensitivities14:20 Salt myths explained15:30 Why movement matters with POTS17:00 How to start exercise safely19:00 Support, structure, and community21:30 Final thoughts + next stepsConnect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife
- Apr 23, 202615 min
Pelvic Floor Dysfunction and POTS
GI symptoms, pain clues, and why a consult mattersIn this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooked.We cover common “beige flags” like GI issues (IBS, bloating, constipation/diarrhea cycles, gastroparesis), bladder symptoms (chronic UTIs, straining to pee), and unexplained pelvic or low back pain. We also touch on tension patterns (like teeth grinding) and conditions like endometriosis and hypermobility.This episode highlights how pelvic floor therapy can fit into a bigger picture approach alongside POTS care, GI support, and mental health.If you feel like your symptoms aren’t fully adding up, this might be a missing piece.Episode breakdown:00:00 Pelvic Floor Meets POTS00:40 Why They Overlap02:09 GI Red Flags Explained03:59 Tension and Constipation Cycle05:13 Movement and Digestion Tips06:45 UTIs and Peeing Strain09:03 Pain, Endo, and Hypermobility11:06 Consults and Team Approach13:02 Finding the Right PT14:10 Program Modifications Together14:50 Wrap Up
- Mar 31, 202635 min
From Surviving to Living Again: A POTS Life Graduate’s Journey
In this episode of Let’s Talk About the POTS Life, we sit down with Veronica, a POTS Life graduate now in our graduate program, to talk about her journey from simply surviving to truly living again.Veronica shares what life looked like when her symptoms were at their worst, navigating frequent episodes, overstimulation, and the day-to-day challenges that made even simple things feel overwhelming.After trying multiple approaches without lasting success, things began to shift with a more structured, individualized approach: including guided exercise, heart rate-based progression, nutrition support, and ongoing adjustments.Over time, she began to notice real changes not just in stamina, but in her ability to tolerate more, feel more confident, and engage in her life again.She now describes her life in one word: freeing.This episode is for anyone who feels stuck, overwhelmed, or unsure of what’s next offering both validation and a reminder that progress is possible.00:00 Welcome and Guest Intro01:02 Emotional Turning Point01:47 Finding Hope Online03:38 Early Symptoms and Triggers05:20 Diagnosis and Early Care07:25 PT Gaps and Testing09:18 Stimulation and Vestibular Work11:15 Work Limits and Boundaries14:01 Why This Program Worked16:35 Blood Sugar Breakthrough17:36 Whole Body POTS Care18:08 Lowering Adrenaline Sensitivity19:34 Work Life Confidence Returns21:07 Setbacks and Program Adjustments22:11 Trips and Life Milestones24:37 Mindset After Lost Time27:32 Graduate Program Support29:10 Advice to New Diagnoses32:17 Community Without Doomscrolling33:22 One Word Freeing34:30 Final Thanks and Next StepsConnect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife
About Let's Talk About The POTS life
POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice
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