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INside the OUTcomes: A Rehabilitation Research Podcast: Daily Summaries Delivered
by Center for Rehabilitation Outcomes Research
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- 1 weeks ago11 min
Redefining Limb Loss Through Osseointegration & Bionic Medicine
Shirley Ryan AbilityLab is at the forefront of advancing the study of “osseointegration,” a novel surgical technique in the field of prosthetics in which a metal rod is surgically implanted into the bone of the residual limb, allowing for a direct connection to the prosthesis. For patients with limb loss, the procedure offers numerous benefits, from improved comfort, control and balance to an enhanced quality of life. On this episode of INside the OUTcomes, we talk with Levi Hargrove, PhD, scientific chair of The Regenstein Foundation Center for Bionic Medicine at Shirley Ryan AbilityLab, about his research in osseointegration and bionic medicine. He shares insights about developing technologies for prosthetic limbs that integrate robotics, neural control and direct skeletal attachment to restore movement and independence for patients. Learn more about a clinical trial of osseointegration for people with upper limb loss.INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90SIMS0015, 90DPHF0012).
- Apr 14, 202621 min
Parkinson's Disease & Storytelling
What happens when people with Parkinson’s disease (PD) use storytelling to share their lived experiences? Can telling their own stories spark connection, confidence and even hope? In this episode of INside the OUTcomes, we explore how the simple, creative act of storytelling can have a profound impact.Join us as we step inside Tellin’ Tales of Parkinson’s Disease, a unique storytelling project of the Parkinson’s Disease & Movement Disorders program at Shirley Ryan AbilityLab. Led by Tekki Lomnicki — founder and artistic director of Tellin’ Tales Theatre — the program helps participants turn personal experiences into meaningful stories that build community.Listeners will hear from Tekki, along with Marty Maibuecher, a participant in the PD storytelling group, and Eric Espinoza, program and outreach coordinator, who leads the hospital's PD support groups.This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90SIMS0015, 90DPHF0012).
- Mar 10, 202623 min
Living Independently in Utrecht, the Netherlands, After Spinal Cord Injury
On this episode of INside the OUTcomes, we talk with Viraj, 29, about living independently in Utrecht, the Netherlands, after a spinal cord injury. Viraj shares his journey from a life-changing accident in India to intensive rehabilitation and returning to work in Utrecht, highlighting the unique support system that allows him to live independently in fully accessible housing. Find the podcast on Spotify, Apple Podcasts or YouTube and browse the podcast archive for past episodes.
- Feb 10, 202643 min
The National Spinal Cord Injury Model Systems Database
For more than 50 years, the National Spinal Cord Injury Model Systems Database has been the cornerstone of spinal cord injury (SCI) research in the United States. Since 1973, it has captured detailed information from thousands of people with traumatic SCI, helping researchers track long-term outcomes, improve rehabilitation care and guide new discoveries. In this episode, we explore how the database works, what makes it unique and how its insights continue to shape the future of SCI care and recovery.Our guests are:Anne Deutsch, PhD, RN, research scientist, Shirley Ryan AbilityLab and co-principal investigator, Midwest Regional Spinal Cord Injury Care System Yuying Chen, MD, PhD, director, National Spinal Cord Injury Statistical Center, University of Alabama at BirminghamJennifer Coker, PhD, MPH, co-director, National Spinal Cord Injury Statistical Center, University of Alabama at BirminghamTrevor Dyson-Hudson, MD, co-director of the Northern New Jersey Spinal Cord Injury System at the Kessler FoundationThis special episode is co-hosted with David McMillan, PhD, host of the American Spinal Injury Association podcast, SCI Science Perspectives.Find the podcast on Spotify, Apple Podcasts or YouTube and browse the podcast archive for past episodes.This podcast is supported by the National Institute on Disability, Independent Living and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90SIMS0015, 90DPHF0012).#spinalcordinjury #rehabilitationresearch
- Jan 12, 202618 min
The Model Systems Knowledge Translation Center
On this episode of INside the OUTcomes, we’re discussing the Model Systems Knowledge Translation Center (MSKTC) and its role in translating complex health information into accessible and useful resources for people living with spinal cord injury (SCI), traumatic brain injury (TBI) and burn injury.Our guest is Cindy Cai, PhD, a researcher at the American Institutes for Research and the principal investigator and project director of the MSKTC. The MSKTC works with model systems researchers — including researchers in the Midwest Regional Spinal Cord Injury Care System at Shirley Ryan AbilityLab — to create easy-to-understand resources about SCI, TBI and burn injury for patients, families and caregivers. Transcripts are available.Listen on Spotify, Apple Podcasts or YouTube.This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90SIMS0015, 90DPHF0012).
- Dec 9, 202530 min
Accessible Air Travel with Open Doors Organization
On this episode of INside the OUTcomes, we're exploring the challenges people with disabilities face when it comes to air travel, and opportunities to enhance accessibility. Mike Whelan, one of our guests, is a member of several Shirley Ryan AbilityLab spinal cord injury research advisory councils and counts himself as a "million miler" -- logging more than a million miles in the air as he travels the world with his manual wheelchair. Our other guest, Eric Lipp, is a former Shirley Ryan AbilityLab patient who turned a frustrating experience into a mission to make travel, transportation and tourism more accessible for all. Eric is the founder and executive director of the Open Doors Organization, a nonprofit that trains transportation staff, leads accessibility advocacy, and collaborates with scientists at Shirley Ryan AbilityLab and Indiana University on research to improve air travel for people with disabilities.This podcast is supported by grants from the National Institute on Disability, Independent Living, and Rehabilitation Research.
- Nov 11, 202517 min
FacingDisability.com: Resources for Families of People Living With Spinal Cord Injury
When Thea Flaum suddenly found herself caring for a family member with a spinal cord injury (SCI), she quickly discovered a lack of resources and support for the loved ones faced by this unexpected challenge. To address this gap, she created FacingDisability.com, a comprehensive platform offering valuable information on everything from medical care to a video series featuring the firsthand experiences and insights from people living with SCI. On this episode of INside the OUTcomes, learn about Thea’s journey and how she created one of the most extensive, free resources for families of people with SCI. Also, hear about her new podcast, “I Was A Wheelchair Kid,” aimed at children and teens with SCI. Transcripts for all episodes are available here. INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90SIMS0015 and 90DPHF0012).
- Oct 13, 202514 min
Rebalancing Long-term Services and Supports
On this episode of INside the OUTcomes, we're discussing the value of rebalancing long-term services and supports (LTSS) — away from institutional care and toward community-based services.We are joined by Courtney Priebe, MPH, a policy associate at ADvancing States, an organization that works to design, improve and support state systems that provide LTSS for older adults, people with disabilities and their caregivers. Courtney is one of the authors of a policy brief on rebalancing LTSS developed in collaboration with the Rehabilitation Research and Training Center on Home and Community-based Services at Shirley Ryan AbilityLab. A transcript of this episode is available.INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90SIMS0015 and 90DPHF0012).#HCBS #LTSS #Rebalancing
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About INside the OUTcomes: A Rehabilitation Research Podcast
INside the OUTcomes is produced by the Center for Rehabilitation Outcomes Research (CROR) at Shirley Ryan AbilityLab and hosted by CROR communications coordinator, Sharon Parmet. On this podcast, we feature interviews with CROR scientists and other leading experts in rehabilitation research. Transcripts: https://www.sralab.org/research/labs/cror/projects/inside-outcomes-rehabilitation-research-podcastThis podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).
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