Untold Stories: Life with a Severe Autoimmune Condition

Carly and Catherine: Hope, Uncertainty, and Clinical Trials.

August 6, 2026·27 min
Episode Description from the Publisher

Catherine, who is living with IgA nephropathy (IgAN), and Carly, a speech-language pathologist whose CIDP once left her paralyzed and dependent on a ventilator, share their experiences participating in clinical trials and the difficult decisions that came before saying yes. Join Martine Hackett as she explores how patients navigate uncertainty, weigh treatment decisions, and find hope in the possibility of helping both themselves and future generations of people living with rare diseases.See omnystudio.com/listener for privacy information.

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