
Season 14 is here, and this time the focus is on how raising a disabled or medically complex child impacts us as people.This season, we’ll be talking about things like anxiety, PTSD, identity, feeling like your body failed your child, numbing out and dissociation, exercise, and being seen as a “Debbie Downer” when you’re honest about the realities of this life. As always, we’ll also have story episodes woven throughout the season, including a long-overdue story episode with Amanda Griffith-Atkins.We’re also sharing some behind-the-scenes updates in this episode, including how Madeline and Alyssa are splitting hosting and production this season, our first in-person board retreat in Maine, and a little of what we’ve been up to over the summer.Finally, we’re wrapping up this season opener with clips from the first few episodes. Don’t miss it!Links:Access the NICU Survival Guide here or at https://therarelife.org/nicuguide.Listen to Ep 81: Health Anxiety.Listen to Ep 85: Should A Child’s Disability be Part of Their Parent’s Identity? w/ Emily Ladau.Fill out our contact form to join upcoming discussion groups!Join The Rare Life newsletter and never miss an update!Follow us on Instagram @the_rare_life!Donate to the podcast or Contact me about sponsoring an episode.
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231: Numbing Out | When Disability Parents Need a Break From Reality

230: Amanda’s Story | Medical-Parent Anxiety, Fear of the Future + 17 Years of Perspective

New Launch: The NICU Survival Guide w/ Cindy Reinhard and Ashley Caywood (Summer Mini #10)

When You and Your Child are Both Medically Complex with Sarah (Summer Mini #9)
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