The Muscular Dystrophy UK: Muscles Matter Podcast

Episode 15 - A mother’s story of joy and grief around her son who lived with Duchenne muscular dystrophy

May 27, 2026·28 min
Episode Description from the Publisher

In our latest Muscles Matter podcast, we dive into a personal story to look at a mother and son relationship, a son who lived with Duchenne muscular dystrophy, their life together, and dealing with grief and loss. Alex is the mother and our guest, and she shares the story of the special times she had with her son Declan, the everyday joy they found in each other’s company, and the magical mystery road trips they took together. Along with how she processed the loss of Declan, her motiva...

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