Free Daily Podcast Summary
The HDSA Podcast: Daily Summaries Delivered
by Huntington's Disease Society of America
The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.
Latest Episodes
The most recent episodes — sign up to get AI-powered summaries of each one.
- 2 weeks ago35 min
Let's Talk About HD Awareness Month Part 2
Send us Fan Mail In this episode of Let’s Talk About HD, hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful conversation about Huntington’s disease, community, connection, and the experiences that shape the HD journey. Together, they share personal perspectives, reflect on the importance of support, and highlight the power of open conversation in helping families feel seen, heard, and less alone. This episode reminds us that eve...
- 4 weeks ago27 min
Let's Talk About HD Awareness Month with Tam, Allison & MaryAnn
Send us Fan Mail Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn In this episode of Let’s Talk About HD, we recognize Huntington’s Disease Awareness Month with a meaningful conversation featuring Tam, Allison, and MaryAnn. Together, they reflect on the importance of raising awareness, and discuss how storytelling, advocacy, and community support help shine a light on the experiences of HD families. Throughout the conversation, Tam, Allison, and MaryAnn highlight why awaren...
- Apr 23, 202627 min
Let's Talk About HD with Tam, Allison & MaryAnn
Send us Fan Mail Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community. Don't forget to follow us on social media!
- Feb 12, 202522 min
S3:E1- Let's Talk About Volunteering with HDSA
Send us Fan Mail In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s mission, this conversation is packed with inspiration and practical ad...
- Dec 2, 202424 min
S2:E5 Let's Talk about the HD ELPFDD Meeting
Send us Fan Mail In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps. Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities identified during the meeting. Whether you attended the ELPFDD...
- Oct 18, 202422 min
S2:E4 - Let's Talk About POWERHD
Send us Fan Mail In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation! Don't forget to follow us on social media!
- Jun 11, 202437 min
S2E3: Phyllis Foxworth & Dr. Victor Sung
Send us Fan Mail In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research. Phyllis is the Senior Manager, Advocacy at HDSA Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors. To learn more about Huntington's disease, please visit HDSA.org. Don't forget to follo...
- May 8, 202439 min
S2E2: Leora Fox, PhD & Kelly Andrew Part 2
Send us Fan Mail In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities. Leora is the Assistant Director of Research and Patient Engagement at HDSA. Kelly is the Coordinator of Research and Mission Programs at HDSA. To learn more about Huntington's disease, please visit HDSA.org. Don't forget to follow us on social media!
About The HDSA Podcast
The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.
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