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Surviving out of Spite: Daily Summaries Delivered
by G-PACT non profit
Welcome to Surviving out of Spite, a G-PACT podcast hosted by two patients living with gastroparesis. This show dives into the challenges , triumphs and everything in between that comes with managing a chronic condition. From heartfelt personal stories to practical advice and lots of laughs along the way, we explore the patient experience, provide informative content, and create a space where you're not alone. Join us as we talk life, health and all the things that make this journey unique.
Latest Episodes
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- 6 days ago49 min
You’re Not Alone: Living with IBD, Gastroparesis & Chronic Illness Challenges
In this episode of Surviving Out of Spite, Sam chats with Amber Tresca of AboutIBD to discuss the realities of living with inflammatory bowel disease (IBD), gastroparesis, and other chronic health challenges. Amber shares her personal journey with J-pouch surgery, navigating life after major medical interventions, and learning how to balance work, health, and personal growth.Sam and Amber talk about the emotional and practical aspects of chronic illness, including managing unpredictability, building supportive communities, protecting mental health, and finding resilience during difficult seasons. They discuss the importance of flexibility, radical acceptance, and creating a life that works with your condition rather than constantly fighting against it.Whether you're living with IBD, gastroparesis, a chronic illness, or supporting someone who is, this conversation offers honest insights, encouragement, and practical wisdom for navigating the ups and downs of long-term health challenges.Where to find more from Amber? IG: @aboutIBDYT: @aboutIBDWeb: www.aboutIBD.comEmail: amber@aboutibd.com
- 1 weeks ago46 min
Inside EDS: A Doctor Who Lives It Talks Medicine, Advocacy & Care
In this episode of Surviving Out of Spite, Sam sits down with Dr. Sarah Cohen Solomon for a deeply honest conversation about chronic illness, Ehlers-Danlos Syndrome (EDS), and what it really takes to build a more humane healthcare system.Dr. Solomon brings a unique dual perspective as both a physician and a patient, offering insight into the lived reality of navigating chronic illness while practicing medicine. They talk about the complexities of individualized care, the importance of listening to patient concerns, and why curiosity, not assumptions, should guide clinical decision-making.This episode is about shifting healthcare toward collaboration, where patients are not dismissed, but believed, supported, and involved in their own care decisions. It’s a call for a more compassionate, responsive, and patient-centered medical system.If you’re living with chronic illness, supporting someone who is, or working in healthcare, this conversation offers grounded insight into how care can be improved through empathy, advocacy, and listening.
- 3 weeks ago34 min
What It’s Really Like Living With Eosinophilic Esophagitis (EOE)
In this episode of Surviving Out of Spite, Sam sits down with Maddie, the voice behind Eosinophilic Chick, to talk about what it’s really like living with Eosinophilic Esophagitis (EOE).Maddie shares her personal journey; from early symptoms and diagnosis to navigating strict dietary restrictions and the reality of starting medication injections. This conversation dives into the physical challenges of managing EOE, as well as the emotional and mental toll that comes with chronic illness.Together, Sam and Maddie also open up about the fear and frustration surrounding food, and what it looks like to slowly reintroduce foods after periods of restriction. They discuss how these moments can be both physically and emotionally overwhelming, and incredibly meaningful.Beyond EOE, this episode highlights the importance of advocacy, community, and connection when living with chronic conditions like EOE and gastroparesis. Because no one should have to navigate this alone.Want to connect with Maddie? Follow her on IG @eosinophilic.chick
- May 13, 202646 min
Poop Talk, But Make It Helpful | Gut Health & Symptom Tracking
In this episode, Sam sat down with Ruth O’Driscoll to have the kind of conversation most people avoid, but absolutely shouldn’t.They dive into the reality of living with digestive issues, why we need to normalize talking about gut health (yes, even the awkward parts), and how self-tracking can be a powerful tool for understanding your body.Ruthie shares her personal journey with digestive health challenges and how it led her to develop an innovative app, Tuut, designed to make symptom and bowel movement tracking easier, more intuitive, and far less overwhelming than traditional methods. Together, they explore how removing shame and simplifying tracking can help people feel more in control of their health.This conversation also goes deeper, touching on the importance of sleep, self-care, and building a supportive community when navigating chronic digestive conditions. Because managing your health isn’t just about data, it’s about feeling seen, supported, and understood.Meet tuut: the first digestive health app that fits lifestyle tracking into your busy life while providing actionable insights. Log data in seconds and let clinically-informed AI algorithms uncover patterns so you can finally identify triggers and feel better. https://www.tuutapp.net/
- May 6, 202638 min
Surviving Celiac Disease: Hidden Gluten, Hard Lessons & Learning to Live Anyway
In this episode, Casey shares her personal journey living with celiac disease, from diagnosis to the ongoing realities of managing a strict gluten-free diet. She opens up about the challenges of navigating hidden gluten in unexpected foods, the learning curve that comes with dietary restrictions, and the emotional impact that can follow a life-changing diagnosis.Together, Sam and Casey explore what it really means to live with celiac disease in everyday life; highlighting coping strategies, symptom management, and the importance of self-compassion along the way. They also discuss the emotional weight of food-related guilt, the evolving landscape of gluten-free options, and how access to better products has helped improve quality of life for many in the gluten-free community.This conversation also emphasizes the power of community support, strong relationships, and self-advocacy when navigating chronic dietary restrictions. Whether you’re newly diagnosed, supporting someone with celiac disease, or simply wanting to better understand gluten-free living, this episode offers validation, education, and hope.Instagram & TikTok: @collegeceliackc https://www.glutenfreewithcasey.com
- Apr 22, 20261h 3m
She Refused to Let Gastroparesis Define Her | A Powerful Patient Story
In this powerful and deeply personal episode, Sam and Sarah dive deeper into Sarah’s story and how she refused to let gastroparesis define her life.From the challenges of diagnosis to the daily realities of living with a chronic digestive condition, she opens up about what it truly means to navigate life with gastroparesis. This is not just a story about illness, it’s about resilience, identity, and choosing to keep going even when your body makes it incredibly hard.We talk about the physical and emotional toll of chronic illness, the isolation that can come with invisible diseases, and how she found strength in the midst of it all. Her journey is a reminder that you are more than your diagnosis.If you or someone you love is living with gastroparesis, chronic illness, or an invisible disease, this conversation will resonate deeply.
- Apr 15, 202632 min
Ehlers-Danlos Syndrome (EDS): The Fight for Diagnosis, Care & Advocacy
Living with Ehlers-Danlos Syndrome (EDS) is more than just managing symptoms, it’s navigating a healthcare system that often doesn’t understand you.In this episode of Surviving Out of Spite, Sam sits down with Lara Bloom of the EDS Society to talk about what it really takes to live with and advocate for EDS. From the long road to diagnosis to the validation that comes with finally being heard, Lara shares her personal journey and the realities so many patients face.This conversation is honest, unfiltered, and a reminder that patient voices are not just important, they’re necessary.If you or someone you love is living with Ehlers-Danlos Syndrome, a rare disease, or navigating chronic illness, this episode will make you feel seen, and remind you that you’re not alone.https://www.ehlers-danlos.com
- Apr 8, 202641 min
He Survived Multiple Organ Transplants, and Chose Hope Anyway
Ty Gipson has been through more than most; juvenile diabetes, multiple organ transplants, and years of fighting just to stay alive. In this episode, Sam and Ty talk about what it actually looks like to keep going when your body keeps throwing the worst at you.This isn’t a sugarcoated story. It’s about resilience on the hard days, the mental battles no one sees, and the moments where giving up feels easier, but you don’t. Ty shares how he’s learned to hold onto hope, lean on the people around him, and turn everything he’s been through into something that helps others.They get into the real stuff: choosing growth when life falls apart, letting yourself feel everything, and why being honest about your story matters, especially in the chronic illness community.If you’re dealing with chronic illness, transplant recovery, or just trying to survive something really heavy, this one is for you.
About Surviving out of Spite
Welcome to Surviving out of Spite, a G-PACT podcast hosted by two patients living with gastroparesis. This show dives into the challenges , triumphs and everything in between that comes with managing a chronic condition. From heartfelt personal stories to practical advice and lots of laughs along the way, we explore the patient experience, provide informative content, and create a space where you're not alone. Join us as we talk life, health and all the things that make this journey unique.
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