
A teenager volunteers for a groundbreaking medical trial… and becomes the center of one of the most controversial moments in research history. In this episode, we dive into the story of Jesse Gelsinger and what his case reveals about trust, ethics, and the cost of scientific progress.....Come Find Out What I've been Reading!References Ezekiel J. Emanuel, Christine C.Grady, Robert A. Crouch, Reidar K. Lie, Franklin G. Miller, & David D.Wendler. (2008). The Oxford Textbook of Clinical Research Ethics. OxfordUniversity Press. Institute of Medicine (US)Committee on Ethical and Legal Issues Relating to the Inclusion of Women inClinical Studies. (1994, January 1). Justice in clinical studies: Guidingprinciples. Women and Health Research: Ethical and Legal Issues of Including Womenin Clinical Studies: Volume I. https://www.ncbi.nlm.nih.gov/books/NBK236544/Office for Human ResearchProtections (OHRP). (2025, July 15). Read the Belmont Report. HHS.gov.https://www.hhs.gov/ohrp/regulations-and-policy/belmont-report/read-the-belmont-report/index.html#xjustShah, P. (2024, November24). Informed consent. StatPearls [Internet].https://www.ncbi.nlm.nih.gov/books/NBK430827/ What is theInstitutional Review Board (IRB)?. Division of Research and Innovation.(2025, August 7).https://research.oregonstate.edu/ori/irb/what-institutional-review-board-irb
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