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by Power Over Parkinson's and Together for Sharon
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
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“Oh crap.” 😮 It’s the unfiltered thought so many people have after a diagnosis, and it’s exactly why Dr. Sara Whittingham used it to title her incredible book, Oh Crap! It's Parkinson's: A Rebel's Guide to Taking Back Control of Your Life. We recently interviewed Sara on the Parkinson’s Policy Podcast, and her energy is absolutely infectious! As an Air Force veteran, M.D., mom, and Ironman triathlete living with PD, Sara is a force of nature. In this episode, we talk about: Shifting the min...
In this episode of the Parkinson’s Policy Podcast, we sit down with Anne Hubbard, Chief Public Policy Officer to discuss the latest policy issues impacting the Parkinson’s community. From advocacy priorities and healthcare access to ongoing legislative efforts, Anne shares insights into how policy can shape better outcomes for people living with Parkinson’s and their families. Tune in for an informative conversation on the work being done to advance support, research, and patient-centered care.
In this episode of the Parkinson’s Policy Podcast, we sit down with Representative Brian Cina, a Vermont legislator and sponsor of the bill to ban paraquat, a widely used herbicide linked to Parkinson’s disease and other serious health concerns. We discuss the growing body of research connecting environmental toxins to Parkinson’s, the policy efforts underway in Vermont, and why advocates, scientists, patients, and lawmakers are pushing for stronger protections against harmful chemical expos...
In this episode of the Parkinson’s Policy Podcast, we sit down with Deborah Swerdlow, Head of Policy at the Parkinson’s Foundation, and Ken Chason, a dedicated patient advocate and member of the Foundation’s Patient Policy Advisory Council (PPAC), for a timely and insightful conversation on the future of Parkinson’s policy. Together, we explore the most pressing policy challenges impacting the Parkinson’s community today, from access to care and affordability of treatments to the need for in...
In this episode of our Parkinson’s Policy Podcast, we sit down with Rep. Hogan of Pennsylvania to discuss HB1135, a bill aimed at prohibiting the use of paraquat, a widely debated herbicide linked to increased Parkinson’s risk. We explore the science behind paraquat, why this legislation matters for public health, and how advocates and constituents can effectively mobilize support. Rep. Hogan shares insights on the policymaking process and practical ways listeners can get involved in pushing ...
In this episode of the Parkinson’s Policy Podcast, we speak with Geoff Horsfield, Legislative Director at the Environmental Working Group. Together, we explore the herbicide paraquat and its emerging connection to Parkinson’s Disease. Geoff breaks down the latest policy developments, the science behind paraquat exposure, and why this issue is gaining national attention. We also discuss what constituents can do to advocate for change, including practical strategies for engaging with lawmakers...
In this episode of the Parkinson’s Policy Podcast, we speak with Senator Devlin Robinson about his sponsorship of Senate Bill 1158, legislation that seeks to ban the use of paraquat in Pennsylvania. Paraquat is a widely used herbicide that has been increasingly linked to Parkinson’s disease through scientific research and legal cases. Senator Robinson shares the motivations behind introducing this bill, the challenges it faces in the legislative process, and what it could mean for both envir...
In this episode of Parkinson’s Policy Podcast, we speak with Rep. Natalie Mihalek about her efforts to protect Pennsylvanians from toxic pesticide exposure. Rep. Mihalek is sponsoring a Pennsylvania House bill to ban paraquat, a widely used herbicide that has been linked in research to an increased risk of Parkinson’s disease. She shares why she introduced the legislation, what it would mean for farmers and communities across the Commonwealth, and how state-level policy can play a critical ro...
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
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