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Parkinson's Policy Podcast: Daily Summaries Delivered
by Power Over Parkinson's and Together for Sharon
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
Latest Episodes
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- 6 days ago15 min
Parkinson's Policy Podcast: Israel Robledo
Patient engagement isn't just a checkbox, it's an essential component of impactful health policy and effective clinical research. In our latest episode of the Parkinson's Policy Podcast, we interviewed Israel Robledo, a prominent advocate and veteran clinical trial participant who has devoted years to bridging the gap between patient communities, research institutions, and policymakers. Key takeaways from our conversation: - How patient advisory boards improve trial recruitment and retentio...
- 1 weeks ago21 min
Parkinson's Policy Update: Dr. Alice Chen-Plotkin
What does the National Plan to End Parkinson’s Act mean for research, clinical care, and patient outcomes? We’re joined by Dr. Alice Chen-Plotkin, a leading physician-scientist and non-federal public member on the newly formed federal Advisory Council on Parkinson's Research, Care, and Services. Dr. Chen-Plotkin breaks down the Council's vital mission to advise the Secretary of Health and Human Services, the cutting-edge science behind Parkinson's biomarkers, and how national strategy can t...
- Aug 17, 202627 min
Parkinson's Policy Podcast: Dr. Deborah Cory-Slechta
Is the rising incidence of Parkinson’s disease connected to the chemicals in our environment? In this episode of the Parkinson’s Policy Podcast, we sit down with the renowned Dr. Deborah Cory-Slechta, Professor of Environmental Medicine, Pediatrics, and Neuroscience at the University of Rochester Medical Center. Dr. Cory-Slechta breaks down decades of pioneering research into how environmental exposures including agricultural pesticides like Paraquat, industrial solvents, heavy metals, and f...
- Aug 10, 202624 min
Parkinson's Policy Podcast: Rep. Jennifer O'Mara
In this episode of the Parkinson’s Policy Podcast, we sit down with Pennsylvania State Representative Jennifer O’Mara (PA HD-165) to explore key policy pathways for supporting the Parkinson’s community. From capitol halls to local communities, we examine how legislative action can transform research and expand healthcare access. We discuss how lawmakers can build cross-party coalitions to prioritize sustained funding for Parkinson’s research, caregiver support, and community services. We also...
- Aug 3, 202622 min
Parkinson's Policy Podcast: Rep. Valerie Gaydos
In this powerful episode of the Parkinson’s Policy Podcast, we are joined by Pennsylvania State Representative Valerie Gaydos. Rep. Gaydos brings a deeply personal perspective to health policy: her late mother, Martha, battled Parkinson’s disease for over 15 years. Today, Rep. Gaydos is channeling that experience into legislative leadership as a strong voice in the push to ban paraquat, a toxic herbicide linked by scientific research to an increased risk of Parkinson’s disease. We dive into h...
- Jul 27, 202638 min
Parkinson's Policy Podcast: PMD Alliance
In this episode of the Parkinson's Policy Podcast, we sit down with two incredible leaders from the Parkinson & Movement Disorder Alliance (PMD Alliance): Dr. Kelly Papesh (Clinical Director) and Rebecca Korduner (Chief Strategy Officer & Deputy CEO). PMD Alliance is shaking up how we think about movement disorders by focusing on the entire ecosystem: patients, care partners, and medical professionals alike. Join us as we dive into how PMD Alliance ensures advocacy efforts reflect div...
- Jul 20, 202638 min
Parkinson's Policy Podcast: Dr. Ray Dorsey and Dr. Michael Okun
In this powerful episode of the Parkinson's Policy Podcast, hosts Margaret Preston and George Ackerman sit down with two of the world’s foremost neurologists and advocates, Dr. Michael S. Okun and Dr. Ray Dorsey, co-authors of Ending Parkinson's Disease and The Parkinson's Plan. Parkinson’s is currently the world’s fastest-growing neurological disorder; a rapid rise driven not primarily by genetics or aging, but by widespread exposure to environmental toxicants. In this conversation, Drs. Oku...
- Jul 13, 202626 min
Parkinson's Policy Podcast: Senator Alexis Calatayud
In this episode of the Parkinson’s Policy Podcast, we sit down with Florida State Senator Alexis Calatayud (District 38) to discuss a massive, historic legislative victory for the neurodegenerative disease community. Senator Calatayud championed SB 1800 (The Parkinson's Disease Research Act), a landmark piece of legislation that passed alongside its companion House bill to officially establish the Consortium for Parkinson's Disease Research within the University of South Florida. This histo...
About Parkinson's Policy Podcast
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
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Frequently Asked Questions
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How often does Parkinson's Policy Podcast release new episodes?
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What topics does Parkinson's Policy Podcast cover?
Parkinson's Policy Podcast covers topics including News, Business, Government, Politics, Non-Profit. Our AI identifies the specific themes in each episode and highlights what matters most to you.
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