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Parkinson's Policy Podcast: Daily Summaries Delivered
by Power Over Parkinson's and Together for Sharon
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
Latest Episodes
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- 3 days ago38 min
Parkinson's Policy Podcast: PMD Alliance
In this episode of the Parkinson's Policy Podcast, we sit down with two incredible leaders from the Parkinson & Movement Disorder Alliance (PMD Alliance): Dr. Kelly Papesh (Clinical Director) and Rebecca Korduner (Chief Strategy Officer & Deputy CEO). PMD Alliance is shaking up how we think about movement disorders by focusing on the entire ecosystem: patients, care partners, and medical professionals alike. Join us as we dive into how PMD Alliance ensures advocacy efforts reflect div...
- 1 weeks ago38 min
Parkinson's Policy Podcast: Dr. Ray Dorsey and Dr. Michael Okun
In this powerful episode of the Parkinson's Policy Podcast, hosts Margaret Preston and George Ackerman sit down with two of the world’s foremost neurologists and advocates, Dr. Michael S. Okun and Dr. Ray Dorsey, co-authors of Ending Parkinson's Disease and The Parkinson's Plan. Parkinson’s is currently the world’s fastest-growing neurological disorder; a rapid rise driven not primarily by genetics or aging, but by widespread exposure to environmental toxicants. In this conversation, Drs. Oku...
- 2 weeks ago26 min
Parkinson's Policy Podcast: Senator Alexis Calatayud
In this episode of the Parkinson’s Policy Podcast, we sit down with Florida State Senator Alexis Calatayud (District 38) to discuss a massive, historic legislative victory for the neurodegenerative disease community. Senator Calatayud championed SB 1800 (The Parkinson's Disease Research Act), a landmark piece of legislation that passed alongside its companion House bill to officially establish the Consortium for Parkinson's Disease Research within the University of South Florida. This histo...
- 3 weeks ago26 min
Parkinson's Policy Podcast: Jessi Keavney
In this episode of the Parkinson’s Policy Podcast, we sit down with Jessi Keavney, a dedicated Parkinson's advocate and member of the National Council. Jessie shares her powerful perspective on the current landscape of policy advocacy, and the critical importance of community engagement in driving legislative change. Tune in to hear her insights on what the future holds for Parkinson's research, care access, and policy reform. In this video, we cover: - Jessie’s personal journey in carrying...
- 3 weeks ago10 min
Parkinson's Policy Podcast: Inaugural National Council Meeting Debrief
The first ever meeting of the federal Advisory Council on Parkinson's Research, Care, and Services was recently held to guide the National Plan to End Parkinson's. The council's goals are to improve Parkinson's disease diagnosis, prevent the disease, and support care partners. Advocacy groups are pushing for fast action. We give our recap of this important discussion.
- Jun 29, 202632 min
Parkinson's Policy Podcast: Del. Richard "Rip" Sullivan
In this heartfelt episode of the Parkinson’s Policy Podcast, we sit down with Del. Richard Sullivan to discuss Virginia’s proposed paraquat legislation, HB1375, and the growing movement to address environmental factors connected to Parkinson’s disease. Delegate Sullivan shares why the bill — which would ban paraquat use in Virginia — was introduced, what happened during the legislative session, and why the measure was ultimately tabled until next year. Beyond policy, this conversation becomes...
- Jun 15, 202638 min
Parkinson's Policy Podcast: Dan Feehan from Michael J. Fox Foundation
What does it take to turn scientific breakthroughs into accessible, life-changing treatments for the millions of families affected by Parkinson’s disease? In this episode of the Parkinson's Policy Podcast, we sit down with Dan Feehan, Chief Policy and Government Affairs Officer at The Michael J. Fox Foundation (MJFF), to pull back the curtain on the legislative fights and advocacy efforts shaping the future of Parkinson's care and research. Dan breaks down the foundation's current strategic...
- Jun 1, 202628 min
Parkinson's Policy Podcast: Dr. Sara Whittingham
“Oh crap.” 😮 It’s the unfiltered thought so many people have after a diagnosis, and it’s exactly why Dr. Sara Whittingham used it to title her incredible book, Oh Crap! It's Parkinson's: A Rebel's Guide to Taking Back Control of Your Life. We recently interviewed Sara on the Parkinson’s Policy Podcast, and her energy is absolutely infectious! As an Air Force veteran, M.D., mom, and Ironman triathlete living with PD, Sara is a force of nature. In this episode, we talk about: Shifting the min...
About Parkinson's Policy Podcast
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
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Frequently Asked Questions
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Parkinson's Policy Podcast covers topics including News, Business, Government, Politics, Non-Profit. Our AI identifies the specific themes in each episode and highlights what matters most to you.
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