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The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer: Daily Summaries Delivered
by Neuroendocrine Cancer UK
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- Apr 15, 202657 min
The Voices behind The Neuroendocrine Cancer 'Invisible Cancer' report
In the first episode of The Invisible Cancer podcast, we hear from the voices behind the Invisible Cancer Report, exploring why greater awareness and earlier diagnosis of neuroendocrine cancer are so important. Through honest and personal accounts, guests share their experiences of living with neuroendocrine cancer, including the challenges of delayed diagnosis and the impact this can have on their lives. The conversation also reflects on their involvement in shaping the report and why raisin...
- Sep 30, 202557 min
Dipping for Dave: Raising Awareness of Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, Cathy speaks to Ruth, the incredible fundraiser and founder behind 'Daily Dip 4 Dave'. Since October 2023, Ruth has taken a cold-water dip every single day, inspired by her husband, Dave, who is living with neuroendocrine cancer. Through stormy weather, freezing temperatures and exhaustion, she’s stayed committed, raising awareness and vital funds for Neuroendocrine Cancer UK, one freezing plunge at a time. This October marks 2 years and to c...
- Jul 9, 202551 min
Neuroendocrine Cancer - Seeing it from Both Sides - A Conversation with Kate & Craig
In this heartfelt and deeply personal episode, Neuroendocrine Cancer UK’s CEO, Cathy, interviews Kate Quirk and Craig Speirs. Both are not only professionals working for Neuroendocrine Cancer UK but are also living with neuroendocrine cancer themselves, thus offering rare dual perspectives on navigating cancer both personally and professionally. Kate works as our Neuroendocrine Cancer Support Co-ordinator and Craig as our Fundraising Co-ordinator. Their conversation includes: Personal...
- Apr 30, 202522 min
Bridging Pharma and Patients in Neuroendocrine Cancer Care
🎙️ In this episode of the Not Just NE Cancer podcast, Neuroendocrine Cancer UK CEO and Co-Founder, Cathy Bouvier Ellis sits down with Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim. Together, they explore: Common misconceptions about the pharmaceutical industryHow patient organisations and the industry can work collaborativelyHow effective these collaborations can be Tanya also highlights a current clinical trial led by Boehringer Ingelheim for Extrapulmonary Neuroendocr...
- Feb 24, 202557 min
What is Neuroendocrine Cancer? Back to Basics with Terminology & Classification
In this episode of the Not Just NE Cancer podcast, the first of 2025, Nikie Jervis, Neuroendocrine Cancer UK's Director of Support Services and NMC registered nurse goes back to basics to explain 'What Neuroendocrine Cancer' is. In conversation with CEO and Co-Founder, Cathy Bouvier Ellis, they discuss the function of our neuroendocrine system, how the cells work in that system and how they play an important role in the sending and receiving of messages from either our brain or endocrine syst...
- Dec 16, 202443 min
Fairylights & Flat Batteries - Kym Winter, CEO at Rareminds
In the final episode of the Not Just NE Cancer podcast of 2024, our host, Cathy, chats with Kym Winter, CEO, Founder and Director of Rareminds who some of our community may already know. In anticipation of the festive period, the new year and everything that these months entail, Kym and Cathy discuss the pressures and expectations of this time of year and how those living with neuroendocrine cancer can navigate festivities whilst experiencing disruptive or difficult symptoms and emoti...
- Nov 7, 202427 min
INCA President, Stephanie Alband | World Neuroendocrine Cancer Day 2024
In this episode of the Not Just NE Cancer podcast, Cathy chats with International Cancer Alliance (INCA) President, Stephanie Alband about the upcoming World Neuroendocrine Cancer Day 2024, the member organisations that make up INCA and the neuroendocrine global community as a whole. INCA Website World Neuroendocrine Cancer Day Support the show
- Nov 6, 202431 min
Navigating Grief: A Wife's Journey After Losing Her Husband to Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, our host, Cathy has a candid and heartfelt conversation with Sue about navigating grief after her husband, Ian passed away from neuroendocrine cancer. This episode may be upsetting for some but we hope it also provides an honest and hopeful portrayal of living life with grief and supporting your loved one to have a 'good' death. Further support: Neuroendocrine Cancer UKDealing with griefSupport the show
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About The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer
Real life experiences, practical advice and everything in between. Whether you are diagnosed with Neuroendocrine Cancer or another rare or less common cancer, our podcast series cover topics from initial diagnosis, treatments and follow up, looking after your mental health and the professional perspectives from those involved in your care. Hosted by Catherine Bouvier and produced by Neuroendocrine Cancer UK. We hope this series answers some of your questions or provides a source of support - or both, after all, this is not just NE cancer.
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