#31 POTS: Symptoms, understanding, and management with Dr Tae Chung

STRATEGIES: Understanding Postural Orthostatic Tachycardia Syndrome (POTS) - Practical Strategies for Diagnosis and Treatment “80- 90% of POTS patients are disabled to a certain extent - people who just cannot work or go to school or are limited in their daily function.” — Dr Tae Chung, POTS Program Director, Johns Hopkins University Postural Orthostatic Tachycardia Syndrome (POTS) is a complex condition linked to dysfunction of the autonomic nervous system. Primarily characterised by an abnormal increase in heart rate when moving from lying down to standing (orthostatic tachycardia), POTS patients experience a wide variety of debilitating symptoms including: Brain fog and cognitive dysfunction Dizziness and lightheadedness Nausea and digestive issues Fatigue Temperature regulation problems In this week’s episode Dr Tae Chung explains the diagnostic criteria for POTS, including orthostatic tachycardia, and the challenges of diagnosing and treating POTS, especially when alongside other co-morbid conditions. We discuss the standard treatments for POTS of this often misdiagnosed or mistreated condition, and why personalised care is essential for effective POTS management. Dr Chung also shares insights from his ongoing research into Long COVID-related POTS, including investigating biomarkers to better understand the condition; exploring drug therapies and non-pharmacological treatment; his work on the RECOVER clinical trial; and research into safe exercise approaches for POTS patients (with Prof. Todd Davenport). And Emily Kate Stephens and Gez Medinger discuss practical, real-world strategies for those suffering from POTS symptoms: How to seek a POTS diagnosis The 10 minute active standard test / NASA lean test Lifestyle interventions: hydration, salt intake, and diet The challenge of exercise of exercise and pacing Trusted resources and support for POTS patients Dr Tae Chung is the Director of the POTS Program and Assistant Professor in Physical Medicine and Rehabilitation at Johns Hopkins University.  A board certified neuromuscular specialist and physiatrist, his primary areas of patient care and research are autonomic nervous system dysfunction. Resources: POTS UK - Managing POTS  Top Tips for Obtaining a Diagnosis  Physical activity and exercise in ME/CFS – NICE guidelines 2021  Standing up to POTS - Daily Management Strategies POTS Foundation Australia - Living with POTS    Interested in taking part or sharing feedback on Make Visible? Please click here.   Find it easier to read than listen? Download the transcript here. Make Visible @visible_health @visible.health