
Friday, June 26, 2026 - Week 26 BIO was good. Need a mouse lab to test molecules all year long. https://www.linkedin.com/posts/graglia_syngap-syngap1-mousemodels-ugcPost-7476041484408901633-Zldd/ MDBR was big, not just Justin A.! Thank you Dr. McKee, Heather and others. cureSYNGAP1.org/MDBR26Recap MERCH - 19 days left! New t-shirts! Buy for everyone! There are some funny ones this year and the classics. cureSYNGAP1.org/Bonfire GENETIC TESTING Valuable resource as you have questions. curesyngap1.org/GT WARRIORS - Phoenix and Kenna cureSYNGAP1.org/Warrior THINGS TO LOOK FORWARD TO… WEBINAR: Understanding ASOs & Informed Consent June 30 4:30 ET curesyngap1.org/calendar/understanding-asos-informed-consent/ 5TH SCRAMBLE FOR SYNGAP, SC – 99 days till October 3rd Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26 SHOOT FOR SYNGAP, UT – 141 days till November 14th fb.watch/HRnwf9FnEB/ FIGHT FOR FELIPE, MA - 155 days till November 29th curesyngap1.org/Fight26 CURE SYNGAP1 CONFERENCE - 159 days until December 3rd & 4th cureSYNGAP1.org/Denver rooms available: cureSYNGAP1.org/denhyatt for $159. In on Wed, out on Saturday. PUBMED Pubmed 2026 is at 38. +12 vs the week. (61 last year was +9) We are already at the 4th highest year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date Props to Dr. Frazier for yet another paper on SYNGAP1 based on his study, one of the best grants ever. https://onlinelibrary.wiley.com/doi/10.1111/dmcn.70337 USA 🇺🇲: Use your ICD-10, F78.A1 SOCIAL MATTERS 5,074 LinkedIn. https://www.linkedin.com/company/curesyngap1 1.59k YouTube. https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 43.8k Insta https://www.instagram.com/curesyngap1 $CAMP closed at $3.92 yesterday. https://www.google.com/finance/beta/quote/CAMP:NASDAQ Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 211 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy
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#Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212

#ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e210

#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209

Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208
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