
A fellow CdLS dad, Gary sits down with Edgar to hear a father's perspective on having a child with Cornelia de Lange Syndrome (CdLS). Edgar, originally from Mexico, is the father of Daniel, a young boy with CdLS. Edgar shares his story of meeting his wife Ulzi, starting a family, moving across continents from Mongolia, back to Mexico and to Switzerland. He shares his journey with receiving the diagnosis, his role as a father and the challenges on accepting the diagnosis, the impact on their m...
Podzilla Summary coming soon
Sign up to get notified when the full AI-powered summary is ready.
Free forever for up to 3 podcasts. No credit card required.

Ep.#17 ๐ Family Series: Marci Dunning - Freya's Mother

Ep. #16 ๐ Family Series: Maria Watkins & Ella- "Life on M Avenue"

Ep. #15 - ๐ Family Series: Dawn Seitz Rauscher - Team Nikki

Ep. #14 -๐๐ฅ Clinical Series: Dr. Peggy Marcon- Blenderized G-Tube Feeds for CdLS
Free AI-powered recaps of CdLS Connections and your other favorite podcasts, delivered to your inbox.
Free forever for up to 3 podcasts. No credit card required.