Growing Up With Vision Loss: An Interview with Penny

Today you are hearing from Penny. Penny lives with retinitis pigmentosa, or RP, a genetic eye condition that causes progressive vision loss. She was diagnosed at 16 with the very same condition her mom has lived without-- with the very same condition her mom has lived with throughout her life. In this conversation, Penny takes us back to the moment she first realized something wasn't quite right and what it was like receiving that diagnosis as a teenager while her twin sister was getting her driver's license and planning for the future. We talk about relationships, motherhood, and the very real decision of whether to have children, knowing they could inherit RP. Penny also shares what living with low vision actually looks like day to day, the constant mental load, and the things that other people often misunderstand. And we talk about Penny's mom and the influence that watching her live with RP had on how Penny came to understand and navigate her own disability. This is Penny's story. We hope you enjoy.⁠⁠⁠Livology (Psychology - Private Practice)⁠⁠⁠⁠⁠⁠MS: Get Your Head Around It! (Online Course)⁠⁠⁠⁠But You’ll Be OK (Online Course)⁠⁠Webinars and Resources⁠If you need any support after listening to our podcast, you can contact Lifeline in Australia at 13 11 14, available 24/7. For support in other locations, please visit⁠ ⁠Befrienders Worldwide⁠⁠.⁠⁠Instagram @butyoulooksogoodpodcast⁠⁠