Amplifying the Patient Journey

Bill Nye on Ataxia, Family Risk, and the Search for Answers

June 29, 2026·22 min
Episode Description from the Publisher

In this episode, Bill Nye—science communicator, television presenter, and ataxia advocate—shares his experience growing up in a family affected by ataxia, discusses the challenges of individuals living with rare neurologic diseases, and reflects on how he has been impacted by the knowledge of his own risk. He is joined by Lauren Moore, PhD, Vice President of Research and Chief Scientific Officer of the National Ataxia Foundation, Golden Valley, MN, who discusses common barriers to diagnosis, clinical management strategies, educational resources for neurologists, and the evolving ataxia treatment landscape.

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